Feeding and Down Syndrome

When breast-feeding an infant with Down syndrome it is important to understand that the baby needs addition DHA or fatty acids and DHA is included in breast milk. DHA is not in formula that is made today so it is necessary to supplement if formula feeding a Down syndrome infant. Down syndrome babies have a tendency to have allergies and sensitivities to cow’s milk. When feeding a cow’s milk based formula the infant may have problems with increase mucus production. If this is the case, it will be necessary to switch to a soy-based formula. Soy-based formula however, has a component in it that tends to depress thyroid gland function. Since most infants with Down syndrome have an under active thyroid, it is best not to feed soy-based formula exclusively or it will have the potential to complicate an already complicated thyroid system. In addition, fluoride will typically depress the thyroid as well so it is best to avoid any formulas that contain fluoride.

Needless to say, where a Down syndrome infant is concerned, breast milk is best. It has the nutrients that a specifically needed and it missing those components that can cause allergic reactions as well. If the baby is having a difficult time with feeding there are ways to help. There is a product that can supplement formula or breast milk to a baby who is not nursing properly or long enough. There is a tube that runs from the container of milk and is taped to the mother’s breast. While the baby sucks on the breast, the tube releases milk into the baby’s mouth while the mother’s breast is being stimulated to make more milk. This device can help the mother not to lose her supply of milk while helping the infant to learn to nurse better. Eventually, the baby is nursing adequately, the mother is making adequate milk, and the supplemental feeder is no longer needed. If the infant does not catch on to breast-feeding the mother should consider pumping her breast milk to feed the baby otherwise the baby will need to be fed a prescription formula that contains the proper nutrients and does not contain the harmful substances for infants with Down syndrome. There are some other supplemental feeders that are provided by the le leche league and by medela group that can help extend the length and quality of breast-feeding. If it becomes necessary for the doctor to insert an NG tube for feeding, it is important to continue having the infant suckle at the breast so the baby does not lose the suck-swallow reflex.

Feeding a baby with Down syndrome can be extremely challenging. A physical therapist can be a good asset to the program. There are ways they can work with the baby to encourage strong sucking so they can eventually nurse. There may be a medical intervention that needs to be done to help the child to nurse properly so the doctor should be notified as well if breast-feeding is a problem for the infant. The old saying that “breast is best” is certainly true for the Down syndrome infant but takes commitment and involvement from all family members and caregivers for the baby.

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All articles on this site are for information only and should not be treated as medical advice.
If you experience any symptoms, consult a medical professional.